Sarah - Endometriosis. My invisible life.

Posted by Amy Treacle on

Sarah, Endo and MeIntroducing my friend, Sarah. Endo warrior, IVF veteran, mum to one very special little fella and all round lovely person. I’m doing a little fund raising for Endometriosis UK in support of their Pink Pants Month and Pink Pants Tea Party, so I asked Sarah to tell us a little about endometriosis and how it affects her life. 

 

I will be donating £1 to Endometriosis UK for every Party Pants pin sold in September. Get yours in the Hello Treacle Store now!

When I say to friends or family my endometriosis has flared up, for the large part you can see in their faces they’re thinking ‘oh god is she moaning about her bad periods again?
Endometriosis is a chronic illness and there are so many misconceptions about what it is that people just don’t get the gravity of how it can make a girl feel, not just physically but emotionally too!
 
It’s a strange old disease as it affects everyone in different ways. For me I am living around half my life with debilitating pain. From ovulation to period, my body decides to ramp it up.
 
People often wonder why I am grabbing my back when I have ‘period pain’ and that’s the thing, in every woman it causes different symptoms. For me it’s chronic abdominal pain, back pain, nausea, fatigue, bowel issues, anxiety, infertility and painful periods. That’s a whole heap of issues to be dealing with every month!
 
Some days I feel like I am on a treadmill just trying to get to the end of the day where you can fold into a heap. Some days I have to give into the pain and fatigue and go to bed, missing out on family life and fun with friends. It’s never an easy decision to make and often come up with reasons as to why I can’t do something as I feel like a broken record.
 
I endlessly look at the calendar and see events coming up I was looking forward to and know it’s going to be an absolute nightmare. I try my absolute best to not let it impact my life but some days I snap at people as the pain gets too much. I don’t take pain medication until it gets to the point where I am doubled in pain as my stomach is now upset from it all. A delightful catch 22 situation where you have to decide between pain or sickness!
 
The average diagnosis is eight years in the UK, I was one of the lucky ones as I knew at 22 when I had an ovarian cyst removed and all the puzzle pieces fell into place. But that was just the beginning. It’s robbed me of a decade of life that instead became a black hole of fertility treatments and drugs and turned me into an anxious, jealous and let’s be honest slightly bonkers individual fixated on motherhood.
 
I am currently waiting on a hysterectomy and cannot wait to start a new painfree existence and really enjoy motherhood and marriage. I am weirdly looking forward to the op so much that I may have a party to celebrate!
My advice is that anyone could be dealing with an invisible illness at any time, so just be kind and have understanding with anyone you meet. The way it should be really!”

 

Find Sarah on Instagram @sarahnicsstyle

Learn more about Endometriosis and their Pink Pants campaign at www.endometriosis-uk.org

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